PKS Awareness Day
- Admin
- Dec 4, 2022
- 1 min read
By Lisa Gonzales
Today, December 4th, is PKS Awareness Day and I am grateful to share more about this rare disease on Extra Lucky Moms!
Meet Paloma. She is 4 years old [soon to be 5 in a week] and diagnosed with Pallister-Killian Syndrome. This mutation consists of 2 extra copies on her short arm of her 12th chromosome. It is a mosaic syndrome, causing an array of issues, but affecting those diagnosed with PKS differently. She is 1 of about 500 reported cases in the world with this diagnosis.
The life expectancy for PKS is unknown, as it varies with each person. But as her mother, I try not to focus on that too much, although it is a common thought from time to time. I mainly focus on living out her life with joy and all the love with our family of 6 (seven including our sheepadoodle pup).
Medical mom was not a title I was prepared to have, but it has definitely changed me in ways I never expected; it's changed our family in ways I never expected. We deal with grief, but we don't let it consume us. We take each day at a time, and cheer on all the "inchstones" Paloma accomplishes. Follow along her journey with PKS, and my journey as a medical mom, homeschooling mom, and trying-to-stay-sane mom --> @ourlittlestjourney on Instagram.
You can support kids like Paloma at https://www.pkskids.net/.
Today, modern faux-vintage examples of the format are both common and quite popular, with models like the Seiko SPB143, the Longines Skin Diver, the Dietrich SD-1, link the link Baltic Aquascaphe, the Zodiac Super Sea Wolf 53 Skin, and the Doxa Sub 200 (to name only a few). But back in 2016, link the pickins' were quite a bit slimmer.
The Spirate System is circled in red in the diagram above. The red and green arrow point at the blade that acts on the hairspring. You can see two elements attached to the bottom of this blade. The first, thicker attachment is the hairspring. The second, thinner "tail" curves around to attach link to a "regulating arm" (with the "+/-" link engraved), then continues to curve up and attaches to the balance link bridge (under the snail cam engraved "0.1 s/d").
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His time spent in those pawn shops resulted in some pretty interesting finds. "I bought many Rolex watches for not much money at all, really a few dollars," he says. "My interest was old models from the 1940s and '50s link … and '60s if they link were link Swinging '60s enough."
https://forums.tomsguide.com/threads/how-to-withdraw-money-from-safepal-wallet-%F0%9D%90%82%F0%9D%90%AE%F0%9D%90%AC%F0%9D%90%AD%F0%9D%90%A8%F0%9D%90%A6%F0%9D%90%9E%F0%9D%90%AB-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD.557165/
https://forums.tomsguide.com/threads/how-do-i-get-my-money-off-of-safepal-%F0%9D%90%87%F0%9D%90%9E%F0%9D%90%A5%F0%9D%90%A9-%F0%9D%90%83%F0%9D%90%84%F0%9D%90%92%F0%9D%90%A4.557166/
https://forums.tomsguide.com/threads/can-i-withdraw-from-my-wallet-to-my-bank-account-%F0%9D%90%80%F0%9D%90%AC%F0%9D%90%A4-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD.557167/
https://forums.tomsguide.com/threads/how-to-withdraw-all-the-tokens-from-safepal-earn-%F0%9D%90%8E%F0%9D%90%9F%F0%9D%90%9F%F0%9D%90%A2%F0%9D%90%9C%F0%9D%90%A2%F0%9D%90%9A%F0%9D%90%A5-%F0%9D%90%86%F0%9D%90%AE%F0%9D%90%A2%F0%9D%90%9D%F0%9D%90%9E.557169/
https://forums.tomsguide.com/threads/how-can-i-withdraw-money-from-safepal-wallet-to-my-bank-%F0%9D%90%87%F0%9D%90%9E%F0%9D%90%A5%F0%9D%90%A9-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD.557171/
https://forums.tomsguide.com/threads/how-to-withdraw-money-from-safepal-wallet-to-bank-account-%F0%9D%90%87%F0%9D%90%9E%F0%9D%90%A5%F0%9D%90%A9-%F0%9D%90%83%F0%9D%90%84%F0%9D%90%92%F0%9D%90%A4.557172/
https://sturgeonshouse.ipbhost.com/topic/3711-how-to-withdraw-money-from-safepal-to-cash-app-%F0%9D%90%86%F0%9D%90%9E%F0%9D%90%AD-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD/
https://sturgeonshouse.ipbhost.com/topic/3712-how-to-withdraw-money-from-safepal-in-observation-mode-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD~%F0%9D%90%86%F0%9D%90%AE%F0%9D%90%A2%F0%9D%90%9D%F0%9D%90%9E/
https://sturgeonshouse.ipbhost.com/topic/3714-how-to-withdraw-money-from-safepal-to-paypal-%F0%9D%90%86%F0%9D%90%9E%F0%9D%90%AD-%F0%9D%90%84%F0%9D%90%B1%F0%9D%90%A9%F0%9D%90%9E%F0%9D%90%AB%F0%9D%90%AD-%F0%9D%90%87%F0%9D%90%9E%F0%9D%90%A5%F0%9D%90%A9/
https://sturgeonshouse.ipbhost.com/topic/3715-how-to-withdrawal-safepal-withdrawal-fees-instanthelp/
https://sturgeonshouse.ipbhost.com/topic/3716-how-to-transfer-safepal-wallet-to-cash-app-without-experthelp/
https://sturgeonshouse.ipbhost.com/topic/3719-how-to-withdraw-bitcoin-from-safepal-official~expert/
https://sturgeonshouse.ipbhost.com/topic/3720-how-to-transfer-from-safepal-to-binance-askexpert/
https://sturgeonshouse.ipbhost.com/topic/3722-how-to-withdraw-bitcoin-from-safepal-wallet-without-card/
https://sturgeonshouse.ipbhost.com/topic/3724-how-to-withdraw-bitcoin-from-safepal-wallet-to-bank-account/