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Story Time: A Lesson in Love and Understanding with Hearts Connected
One evening, Sarah was sitting on the couch with her 7-year-old daughter, Emma, while her 4-year-old daughter, Lily, who has Down...
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Dec 18, 20243 min read


Miracle Pelayo's Story
My name is Miracle Pelayo, and this is my story. I was born 23 weeks early, weighing just 1 lb 12 oz. The doctors gave me a 5% chance of...
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Aug 26, 20243 min read


Finn was always meant to be here…
Written by Ally Reyes I was about 12 weeks pregnant when I got a phone call from my midwife. “Hi Ally, I got the results back from your...
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Aug 5, 20244 min read


Tatertot Takes the World!
Writen by Katie Burwell We received Tatum’s diagnosis of Down syndrome at birth. To say it was a shock would be an understatement,...
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Jul 22, 20244 min read


Accessibility: A Right, Not a Privilege
By: Kristen Millar I took my son to yet another appointment at his paediatrician’s office today. I was ecstatic that we were able to...
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Jun 12, 20243 min read


Francesca's Mental Health Journey
By Francesca Jaffe Every year I spend a lot of time thinking and reflecting on Mental Health Awareness Month. Honestly, I think of my...
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May 31, 20244 min read


Marci + Freya: Journey With CdLS
Written by: Marci Dunning My name is Marci. I spend hours everyday trying to convince complete strangers that my daughter's life has...
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May 10, 20243 min read


Rick + Erik: Journey through CdLS
Written by: Rick Oberg As I write this, it's been 37 years, 156 days, and 8 hours since Erik arrived. And after everything we've been...
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May 10, 20242 min read


Mother’s Day in the Extra Lucky Community
By Taryn Lagonigro As we take time to celebrate Mother’s Day this weekend, we acknowledge that this holiday can sometimes be experienced...
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May 9, 20244 min read


Supporting Your Child's Mental Health Needs
Written by: Erica Realpe, MA, LMFT, and Co-Author of Dear Mama, Stories of an Extra Lucky Life As parents with children with a...
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May 6, 20243 min read
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