Miracle Pelayo's Story
My name is Miracle Pelayo, and this is my story. I was born 23 weeks early, weighing just 1 lb 12 oz. The doctors gave me a 5% chance of...
top of page
Admin
- Aug 5
- 4 min
Finn was always meant to be here…
Written by Ally Reyes I was about 12 weeks pregnant when I got a phone call from my midwife. “Hi Ally, I got the results back from your...
65 views0 comments
Admin
- Jul 22
- 4 min
Tatertot Takes the World!
Writen by Katie Burwell We received Tatum’s diagnosis of Down syndrome at birth. To say it was a shock would be an understatement,...
91 views1 comment
Admin
- Jun 12
- 3 min
Accessibility: A Right, Not a Privilege
By: Kristen Millar I took my son to yet another appointment at his paediatrician’s office today. I was ecstatic that we were able to...
158 views3 comments
Admin
- May 31
- 4 min
Francesca's Mental Health Journey
By Francesca Jaffe Every year I spend a lot of time thinking and reflecting on Mental Health Awareness Month. Honestly, I think of my...
197 views3 comments
Admin
- May 10
- 3 min
Marci + Freya: Journey With CdLS
Written by: Marci Dunning My name is Marci. I spend hours everyday trying to convince complete strangers that my daughter's life has...
58 views4 comments
Admin
- May 10
- 2 min
Rick + Erik: Journey through CdLS
Written by: Rick Oberg As I write this, it's been 37 years, 156 days, and 8 hours since Erik arrived. And after everything we've been...
44 views2 comments
Admin
- May 9
- 4 min
Mother’s Day in the Extra Lucky Community
By Taryn Lagonigro As we take time to celebrate Mother’s Day this weekend, we acknowledge that this holiday can sometimes be experienced...
54 views1 comment
Admin
- May 6
- 3 min
Supporting Your Child's Mental Health Needs
Written by: Erica Realpe, MA, LMFT, and Co-Author of Dear Mama, Stories of an Extra Lucky Life As parents with children with a...
21 views1 comment
Admin
- May 2
- 3 min
Navigating Mental Health Challenges in Marriage: Tips from the Extra Lucky Community
Written by: Erica Realpe, MA, LMFT, and Co-Author of Dear Mama, Stories of an Extra Lucky Life In the Extra Lucky Community, we've...
30 views3 comments
bottom of page